Thursday, April 24, 2014

March of Dimes Walk

In just a few days, the Pensacola March of Dimes has their annual walk.  We are unable to attend this year because of a conflict with Andy's squadron's 5K event that we are both helping out with.  However, just because we can't walk, doesn't mean we can't help raise $ for a great cause!  Please consider donating below if you would like to help our team reach their goal, and more importantly, for children born prematurely to have better chances of survival.

I read last week that 1 in 9 children are born prematurely.  We have had 4 of our 5 children born 10 weeks early.  This cause is near and dear to our hearts because without medical technology, none of our 3 surviving preemies would be here today!!  Whether we are an oddity, rarity, or just not average-we ARE blessed!!! Thanks to March of Dimes, and all whose research and advocacy has paved the way for the remarkable care premies get today.

Here's the link for Team Brady's Gift:
 http://www.marchforbabies.org/team/t2037107

THANK YOU ALL!!

Wednesday, March 5, 2014

Birthday Mania!

Tomorrow, Jordan and Drew turn 5!  Their bedroom doors will soon be decorated, their "big kid" bikes are put together and ready to ride, and their cupcakes and cookies waiting to share with their classmates tomorrow.  I have sat for the last hour and looked back through the photos from 5 years ago, and it seems like yesterday, and yet so long ago, all at the same time.  I am going to post some photos from then to allow you all to reminisce with us for a moment. 

(2009 Quick Recap) I went into the hospital straight from an ultrasound on March 3rd, because it showed that the boys had developed twin to twin transfusion syndrome because they were identical and shared a placenta.  Drew was the receiving twin, and Brady was the donor twin, so fluids and nutrients were going to Drew instead of Brady, and could cause problems for both of them.  The doctor was able to drain 2 liters of fluid from Drew's embryonic sac that night, but there wasn't alot they could do to help build Brady's fluid back up, so they told me that I was in the hospital until they were born, which we were hoping was still months away (I was only 29 weeks and 5 days along). 

On the morning of March 6th, Andy came by the hospital on his way to work.  My mom (Nana) was home with Eli, who had turned 2 only 3 weeks prior.  Fortunately, my daily ultrasound was done while Andy was there.  They found that Brady was in distress, with no fluid, and my body was going into labor (the Dr felt Brady's shoulder when she checked me)!  SO, off we went to the O.R...Andy called my mom, who managed to get Eli loaded and find her way to the downtown hospital in a city she didn't know (no small feat).  They gathered the 30 or so staff, who were waiting on us (another miracle) in the operating room when we got there, and the babies were born via c-secion, each less than a minute apart.  Drew Gergory was born first, weighing in at 2 lbs 5 oz; Jordan Elizabeth was next, weighing 2 lbs, 15 oz; then BradyThomas was born, weighing 1 lb 11oz.  For being so tiny, they all were doing exceptionally well right after birth, and were all breathing on their own very quickly.  Pops (Andy's Uncle John) and our Pastor, Mark Foster, were there with my mom and Eli, waiting in the hallway to capture glimpses of the babies as they wheeled them past to the NICU.

The next weeks and months were a roller coaster that I wish upon no one, but with the love and support of our family, friends, and church, we made it through.  I experienced God in a way that I never had before, and He gave us peace, strength and hope, as we prayed and watched over our miracles.  We shared with everyone then, and we still believe today, that God saved Brady's life and protected him until Drew and Jordan were old enough to survive and thrive outside the womb.  Brady lived for 13 days.  That year, our dear friend, Brittny, started Team Brady's Gift for the March of Dimes walk, and we have continued the tradition each year.  Even when we are physically unable to make the walk, we still register our team and raise money in honor of Jordan and Drew (and now Luke), and in memory of Brady.  Watch our blog for more information on the MOD Walk for this year....I need to get through this weekend's double birthday party first, and then I will get registered!

So, here are my "throwback Thursday" photos for this week, all from 5 years ago!  I know lots of people think I am crazy to share my bare belly photos, but I don't have that many photos of Brady, and when I was carrying the triplets, he was still healthy and alive.  Also, it was SO hard towards the end of my pregnancy to even breathe, that I look back and celebrate the fact that I carried them for as long as I did.  It was definitely a challenge!  We love them all so much, and have been celebrating them a little extra all week long.  I promise to post fun bday pictures soon!
 14 weeks

 27 weeks (and the reason I will never wear a bikini again)

 Eli's bday party (2/14)

 A full team for each baby

 Last family photo with just the 3 of us!

 Andy and Drew

 Andy and Jordan

 Cathy and Brady

 Cathy and Jordan

Drew

 1st time to hold both

 Cobedding later

 No cuter photo ever!

Wednesday, January 22, 2014

Crying and Dying...Bedtime Snuggle Topics at Our House

Most nights, I have Luke on my hip as we make our rounds into each of the 3 bigger kids rooms to say good night and pray with them.  His low tolerance for holding still unless asleep makes these times last just a few minutes.  However, tonight, Luke was asleep before the other children, which allowed me some extra snuggle time with each of the kids.  What a blessing!

Jordan told me that I was the best Mommy in the world (she tells me this many times a day-not a title that I deserve most of the time, but it's our thing).  She tells me how I am the best Mommy in the world, and I tell her that she is the best daughter in the world.  A benefit of being the only girl in our family!  I prayed for her as she fell asleep, and it was wonderful.

Next was Drew.  At first, he told me a joke that he claimed he made up. "Why did the bugger get aten?  Because it was a HAMbugger!" :)  Then, he talked alot more, asking questions that I am always amazed at.  First, came the questions about his age and Eli's age and how he won't ever be older than him.  We talked about how he and Jordan will always be the same age, and he said, "and Brady too."  Yes, he is not a baby anymore!  He is a 4 and a half year old in Heaven.  Then he asked where his gravestone is and why.  I explain that Daddy and I chose to have his gravestone in Indiana, where we are both from, and where our grandparents are also buried.  His questions were so sincere, and full of curiosity.  It wasn't a sad conversation.  He was just trying to understand it all.  "How are gravestones made?"   "So, did Brady die there?"  "Why did you bury him there?"  "How did he get there?"  Now, this part is trickier for me.  Cremation came up the other day, and it is hard to explain to 4 and 6 year olds that bodies are burned and turn into ashes.  With their vivid imaginations, we really tried to explain it without focusing too much on the whole process.  Then, like that, he moved on and started talking about the sticker on his wall...

But, one more question came up after many minutes of silence.  It was actually a statement, and it touched my heart profoundly because it was a moment in time that I had forgotten about until tonight.  He said, "Mommy, I remember when you were crying."  I asked him to tell me what he remembered, and he said, "It was in Oklahoma."  I began racking my brain, and finally remembered a night after the kids had been in bed awhile, and he came into my bedroom and I was crying.  Not the soft, gentle tears, but the big sobs of just needing to release my emotions.  Sobs that I couldn't just turn off quickly.  And so, I cried, and talked to him about it.  Tonight, I asked if he remembered why I was crying, and he replied, "because you missed Daddy. And I told you just to call him.  You can just Facetime him.... I missed him too."  These words just melted my heart.  We can try to teach our kids so many things, but that moment of sharing made such an impact on him that he recalled it out of the blue a year later.  My kids don't see me cry alot, not because I try to hide it from them, but I have never been a big crier.  And when I do cry, it tends to be during my alone moments with God, when I am hurting and healling all at the same time; processing all that we call life, and of course, death that comes to us all.

Now, by the time I made it to Eli's room, he was almost asleep, but he shifted and put our foreheads together as I snuggled in next to him.  I prayed for him too, as I do every night, and was reminded of how little these people really are.  I think of them as so big because of my experience as their Mommy, but at the young ages of 6 and 4, they have so much life yet to experience.  In fact, the child development courses will tell you that they still use more magical thinking than logical thinking at these ages (which may explain alot about some choices they make, so pause and let that sink in if you are a parent of this age group)! 

We pause alot in this house and "take it in".  It's natural to do so when you have stared death in the face twice with your children.  But, we still are normal, busy people, who have long to do lists that never seem to get done, and days that go by too fast.  As I type, I have dishes and laundry waiting on me!  Tonight was just what I needed to renew my soul.  I pray that you have a moment soon when you are able to pause, and renew your soul too.  Good night my friends, and have a happy tomorrow.

Friday, January 17, 2014

One year later...Luke

It was a year ago today that Luke was discharged from the hospital (for the 2nd time), and began his road to recovery at home once again. January 17th was my Grandpa Jordan's birthday, and I can't help but think he helped us get discharged on this day to help me be at ease with taking Luke home again. God worked miracles people-not just by saving Luke's life, but by helping me have peace and confidence to care for him outside those hospital walls, where he was being watched by multiple medical professionals and there were machines that he could be hooked up to if he needed them. There were other people who knew signs of distress and could do CPR on him if he needed it; other people who went to school for years and were responsible for saving lives on a daily basis.  
Outside those walls, it all fell back onto my shoulders and it was scary. Andy was home, but not for long. He had to go back to training in Texas. Then I would be all alone with 4 kids. Luke came home on 3 monitors, on full-time oxygen, and was weaning off of 3 narcotics, so we had to deal with withdrawal too. I was scared.  Oh, and did I mention that I was going back to our house where I found him cold, blue and lifeless? Where I gave him CPR for so long that at one point, I stopped and looked at my mom and screamed, "Where are they (the ambulance)?! I don't want to do this anymore!" I was definitely scared. 
But, what I want to share is that GOD WAS THERE. I felt His presence as I did CPR. I felt His presence at the hospital, and each day he put people in my path to help me have peace again. He reminded me to give all my fear and worries to Him, and I did. I don't know how anyone can go through such trauma and not lean on God. He made sure that on the day of discharge, I was confident and knew the ins and outs of Luke's care. He made sure I was rested and healthy, and that I was done with that tiny hospital room with the recliner as a bed, and nurses who were busy and monitors that were annoying. He gently led me step by step back to being the me I was meant to be. 
I am not going to lie. Those first weeks home were tough. Luke was inconsolable a lot of the time. Just changing his diaper would send him into a crying fit that lasted hours. He wouldn't let me sit, so I stood and bounced him for hours at a time, standing in one spot because of all his monitors and oxygen tubes/wiring. Our biggest challenge was making sure he ate enough calories each day, and kept up with his medicines. It was rough, but we made it through. God gave us an amazing family, and friends, who selflessly helped in any way they could. I remind myself of how far we have come in this last year, and I pray daily for those still in situations like ours. 
Today, Luke played in the kitchen cabinets while I made meals and did dishes. He pushed his walking toy around our home chasing his siblings, and threw food off of his high chair tray to say he was done with lunch. He danced to any music he heard, and folded his hands to pray at least 100 times (it's his thing right now). He laughed as Andy played peek-a-boo with him, and he is snuggled in my arms as I type all of this. We are so humbled, grateful and ecstatic that God gave us this gift, not once, but twice. He is our miracle. He is God's miracle. Praise to Him always. 

Tuesday, October 1, 2013

Night Walk

We love our neighborhood! Wetlands and lagoon make for a fun family walk and inspiration for coloring. 

Friday, September 27, 2013

Luke Thomas Turns 1

Okay, so I obviously haven't blogged in awhile...hopefully now that we are getting settled in Florida, I will keep up better again.  There is alot to update you on, but for today, I am going to focus on and celebrate LUKE!

As I reflected this week about Luke's birthday, I was reminded by my sister how different Luke's "birth day" was from most.  On birthdays, we usually reflect on the joy experienced as our newborn finally enters the world, after much anticipation.  This week, as we remembered Luke's birth, it brought back so many emotions that I had to decipher them all again and remember that today is ultimately a day to celebrate!  I want to share Luke's story because I want everyone to know that he is a miracle from God, and even though he has been closer to death than most of us will ever come (until actual death), God saved him.  God SAVED him...I don't know the how or why, but I am filled with eternal gratitude, and will share Luke's story as much as I can, with hope that it may bring one person one step closer to knowing Christ.  It has been a difficult year, and I hope and pray that our family doesn't have to endure trials like that again for a long time.  But through it all, God was with us.  Here is a brief recap of our life last year:

A year ago today, I had been on hospital bedrest for 28 days and had an ultrasound before 6am.  The ultrasound confirmed what we expected: my amniotic fluid was low again and Luke was going to be born today.  Andy was planning to get Eli on the bus and drop Jordan and Drew off with a friend before coming to the hospital.  They scheduled my c-section for 11:00 am, but by 9am they were "prepping me" for an emergency c-section because Luke was showing signs of distress.  Andy wasn't there yet, but was on his way.  I remember thinking that maybe we waited too long to get him out.  It was such a constant internal struggle to determine if he was better off in utero for longer, or if he needed to come out.  Andy made it as they were rolling me into the OR and was there to welcome our little 3lb 5oz miracle into the world.  It wasn't the wonderful, joyous entrance into the world that parents imagine.  It took the staff awhile to get Luke intubated, and he was struggling.  It wasn't the first time we would pray for him to live, and it wouldn't be the last.

Since he was born, Luke has spent 79 days in the hospital (NICU and PICU combined).  It has been a rough year for sure, which is why we are celebrating so much today.  We wondered many times if his first birthday would be a time of joy or sorrow.  We have known both.  We thank God everyday that this day is one of JOY for us.  I am thankful for every moment I am able to rock him, play with him, feed him, make him laugh, and so much more.  I took time to jog to the ocean this morning, and saw a nun on the boardwalk. I love the creative ways that God shows me that He is always with us, helping us through our struggles and celebrating with us in our joy.

We couldn't love Luke more, and have had a great day celebrating (with more fun tomorrow).  Grandpa and GG arrived from Indiana, and the cards, gifts and well wishes have been coming in all week.  Thanks to each of you and so many more who had a role in our lives this past year.  We are eternally grateful.  As his older siblings say, "cutie" melts our hearts daily and completes our family perfectly.  HAPPY 1ST BIRTHDAY LUKE THOMAS!!

Fun Luke Facts:
Weight: 18 lbs (on the scale with me this morning)
Favorites: those baby puffs, chewing on everything, laughing at his older siblings, bathtime, jumping like crazy in his jumperoo, mirrors, and of course, his Mama
He has 7 teeth; says dadadada, and a few other sounds sometimes; he claps and waves; sits up well on his own, even reaching for toys without falling, likes to stand for short times alone, and just this week started the motion of steps when standing.
He does NOT sleep through the night; still loves his animal pacifiers, takes 2 naps a day, can fall asleep anywhere if being held my Mommy and tired enough, has bright blue eyes that people comment on when they meet him all the time.
Still is on a pulsoximeter and heart monitor at night, and still on his pulmonary hypertension medication. He drinks soy formula and eats baby food, plus some table foods (pancakes, cheerios, toast, and more).
He cries often when Mommy walks out of the room and he still has a temper, even though his demeanor has mellowed out tremendously and he is more flexible than when he first came home from the PICU.